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Re: A long rave

Good morning to all here @Mazarita @greenpea @Emelia8 @Faith-and-Hope  and to others here sometimes @Adge @Meowmy @Anastasia @TAB @Flying_Hams @Angels333 @Appleblossom @Shaz51  and anyone I've missed.  I'm just not up to doing mass tags these days but there are many others I think of frequently.

Hope today is starting gently for all and has some highlights in it, or at least no major lows.  Will be here for a bit if anyone wants to chat.

 

 

Re: A long rave

Thanks @eth
That helps 🙂
Good on you my friend 🙂

Re: A long rave

Hi @Faith-and-Hope  I really hope your daughter's NDIS plan goes through smoothly and S2bx behaves himself in the negotiation phase.

 

@Mazarita dear I'm so happy you've been approved!  It really is an achievement given all the hoops they make us go through.  Were you able to submit reports and letters of support from people who work with you or did they do an independent assessment (as they call it, but it's done by a company that has tendered for the job and is effectively employed by them).  I am already anxious about the possibility of the latter happening to me.  My current plan expires the first week of July.  I had a one year plan initially then a 2 year plan the 2nd time.  How long is yours for?  Hoping you know that you can choose where your planning meeting takes place - you can have it face to face (in person) at either their office or your home;  you don't have to have it on the phone.  A lot of people say face to face is much better than over the phone.  You are also allowed to have a support person there with you - I had 2 (bro and sil the first time and sil and my coordinator of supports (CoS) the 2nd time).  There is a possibility of my plan being rolled over (the same as the current one with no need for planning meeting) and I think that's the best I can hope for.  I would suggest going for a CoS rather than a Recovery Coach or both if possible, if you are offered a choice.  Also wondering how your plan will be managed?  For me, having a plan manager has worked really well. The other two options are agency managed (NDIS does it and controls everything) or self managed (which I'm def not up for) .  Ask me if you want to know more about what the differences are.  I'm rambling again but just so happy for you that you will be able to have increased supports, social and community participation and hopefully the private yoga tuition too.  

Sorry to hear that you were unable to continue the group yoga but I understand the pressure you felt to attend and admire the way your support person has handled it.  Not entirely sure but I think if it's a group activity it can come out of core social and community participation but if it is solo it counts as physical therapy and comes out of capacity building funds.  Hope you'll soon have a person on board who can sort this type of stuff out for you.

One thing that really helped me (and I've done it again since to as it gets updated from time to time) was to read right through the NDIS Price Guide (it is a big document, you can find it on their webpage) to get an idea of just what it's possible to ask for.  e.g. I found a deeply buried item called Innovative Social and Community Participation which I was able to use for my MH OT driving lessons.

Getting set up with what you need/want to use your funds for is a huge learning curve that's for sure.  

Sorry to hear your gut pain has been so much worse.  I think it does make sense that being distressed can exacerbate it.  Hopefully it's settling by now.

Re poetry sharing - I too have shared some very soul baring pieces in live readings, but usually they are the ones that get the most amazing responses.  And you're right that sometimes the less words the more powerful a piece can be.  I really hope your performance feels good once you're doing it and that you get a wonderful response.  You're also right about the ways it benefits us that you mentioned.  I'm nearly always write in the first person and have been challenged by a couple of encouraging people to have a go at 2nd or 3rd person more often.  Had a go at that on the weekend and I really felt a shift in what came out when I changed the narrator.

So I've raved again!!  Very much look forward to hearing from you when you're up to it.  xoxo

 

Re: A long rave

Good Morning @eth  I was out walking , so that's something. Hadf tooth out yest so thats bothering me well as much as I let it I guess. Hope things okay for you. Going to drs in around 3 hrs ish to report on my efforts from last week lol, cant really care anymore, dont know why let it get to me. Any hoo

Re: A long rave

Congratulations Mazy! @Mazarita  fireworks.gif

 

So happy for you Heart

Lots of love to you HeartHeartHeart

Re: A long rave

Thanks @eth  ..... I appreciate that.

 

I am really proud of you and @Mazarita though, in achieving NDIS support.  It's a given for D2 (once my application finally got through  ...... my first round of response mysteriously disappeared in the mail system between their office and our post box, three months before s2bx left, and he was handling the mail ..... ??!!), but yours was something you had to fight hard for, and lay out your areas of 

vulnerability and struggle for.  That is hugely brave, and a very difficult thing for anyone to do.  I have raised this with S2, but he is not in a place where he can take that on at this point in time.  He has considered it though, and will continue to do so.  There is something of a comfort knowing that the prospect is there.

 

That procedure was beyond D2's understanding, but she is bright enough to recognise her younger siblings "overtaking" her with skill development, life opportunities, independence, etc, which is part of her struggle.  She has also known for a long time that her physical features are "different" and cause people to respond to her in a way that both creates and removes societal boundaries in an instant, in different directions.  I think NDIS has arrived at the right time for her, and as you said, I hope s2bx behaves himself as we finalise her plan.  

 

His last comment was that he was "relieved I am finally doing something ito support our daughter" :face_with_rolling_eyes:😡 ..... after initially opposing the idea :face_with_rolling_eyes:😡 ..... so hopefully he will look like a right narna if he does try to mess things up now.

 

Meantime I am loving hearing how much it has helped you, and the changes it has enabled in your life ❣️

Re: A long rave

Hi @Faith-and-Hope @Emelia8 @greenpea @eth @Exoplanet thank you for your good vibes about my NDIS approval. Big hugs at your doors.

 

Hi and have a good one today and evening to @Flying_Hams and everyone passing through this discussion thread.

Re: A long rave

Hey maz
Sorry I didn't hear about this earlier but I am happy to hear that you are approved on the NDIS Thats good news. Its tough. My sister went through that experience recently.

Take care friend @Mazarita

Re: A long rave

@eth hey, Eth, have a good day Take care

 

Re: A long rave

Good News @Mazarita 

It needs management, but your needs are central to the tenet of NDIS entitlement.  A really weird concept for me to get my head around.  It should make life better.

 

@Faith-and-Hope 
On you for hanging in there, but what else can we do.  Hearing you about the shifting stances of problematic spouses.  Good to see you around.

 

@Hey @Meowmy @Flying_Hams @eth 

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